Invisible Illness

What-is-it-like-300x167What does invisible illness mean? Invisible Illness are disabilities that are not immediately seen. Illnesses like Multiple Sclerosis, Depression, COPD (Chronic Obstructive Pulmonary), APD (Auditory Processing Disorder) and many others are felt but not seen by outsiders. 

Living life with an invisible illness can be extremely frustrating because when something is not seen to the naked eye, people tend to think the condition is being made up and not a real problem. For all of us that battle with one of these invisible illnesses we know how much we feel it, so when anyone questions our illness it can be emotionally draining. I do  completely understand that a lot of people have not been well-educated as to what MS is and what it does to the body, so I do my best to explain it to those I have to be around like co-workers.  Honestly the only time explaining gets frustrating is when I have explained things is the simplest terms possible and the same person still does not get it and does not even try to understand. Invisible-illness-under-the-surface

We have all learned the best ways to survive any illness we have been inflicted with and continue to carry on an amazing life. Some would say I live a very dull and boring life because I typically go to work, come home, my husband and I have our TV shows we watch together every night, eat dinner, take care of our fur babies, read, write and that is pretty much all. We do not go out “on the town”, we both prefer to stay in the comfort of our home. When we are able to we like to go on vacations to the beach or the mountains for snowboarding, but we do not have a deep desire to be out constantly doing something. I prefer to not allow any kind of drama and disaster into my peaceful life because all that does is cause stress which leads to further health issues. I am able to survive the MS because of the choices I make in my life. I try to stay calm and positive because to me that is the only way to make it in this world. 

There are so many reasons why staying positive is the best way to live life! A positive mind will improve daily interactions with others, makes it easier to avoid worries and negative thoughts and it will bring optimism to your life! Even during the most difficult times in life it really will help to try to find the positive in the situation. I do believe that everything happens for a reason, it is just hard sometimes to figure out the reasons. I hope one reason I have MS is so I can show others that you can live a fulfilling life even while battling an illness!

Yesterday my husband and I went to have lunch with my in-laws, sister-in-law and niece. It was a nice to be able to catch up with family and I was able to show how much I have familyimproved with my flare up. I was in a lot of pain by the end of the visit but I had a good time. I am so thankful for the wonderful family that I married into. There is always great conversations and fun times! While it was great to be around family, I was so happy when we got home so I could change into comfortable clothes and be surrounded by our wonderful fur babies!

I hope y’all are having a nice weekend so far and if you went out shopping you were safe! I can only imagine how crowded the stores are, but I hope it was a good time overall! I always like to rest and not do much house work on Saturday, but on Sunday I will do the fun job of grocery shopping and laundry. 

Thank you so much for reading and commenting on my thoughts of the day! I have been so delighted by how many people I have been able to have great conversations with! I really love getting to know to know y’all! I really hope that I have been able to help y’all with things you are dealing with. I obviously have a lot of experience and knowledge with the struggles of MS but I actually have a lot of knowledge with making it through other strains life throws our way! Please feel free to email me anytime and I will respond as soon as possible! Much love and wishing you lots of comfort! I hope you have a great evening!

Love 2

Always, Alyssa

 

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About Positively Alyssa

I was diagnosed 16 years ago, when I was only 19 years old, with Relapsing Remitting Multiple Sclerosis. I had gone to my eye doctor because I had lost vision in my left eye. Prior to my appointment, I had prepared myself to have the doctor confirm that I would be blind in my left eye and that was all. Never in a million years did I expect to hear the doctor tell me that after consulting with his colleagues, that I need to go for an MRI that day because they were thinking that with my symptoms that I had MS. Just a couple hours later I went to get the life altering MRI. I remember that phone call like it was yesterday. My eye doctor called me from his home at 9:30 at night to confirm what they suspected, I in fact had MS. He immediately referred me to a specialist he knew and I was able to get in to see him that same week. Luckily, after a round of steroids, my vision came back in my eye just leaving me with leg pain that would continue to be part of my life. Through the years I have tried numerous different medications that are meant to slow the progression of the disease down. I was never good at the injections and it wasn't because of the needle, it was because the medication burned like fire going in. Still after all these years I still go through my battles of denial, anger, frustration and sadness. However, I have always said that I would NEVER allow MS to control my life but I would control the disease. For the most part, I have been pretty successful with that. I mean we all have our bad days but it doesn't make the situation any better. With this blog I am hoping that with my experiences, endless amounts of research and a powerful fight i me that I can not only help others going through this but that I can learn from others as well. Living with the ups and downs of MS can be challenging but the power of the mind can beat anything that is thrown our way!
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19 Responses to Invisible Illness

  1. Create Space says:

    Great post Alyssa, that is relevant to so many people. I’m delighted to see you are feeling a little better, hopefully you have turned a corner on your flare-up now. X

    Liked by 1 person

    • Thank you so much! I am really glad to be feeling so much better than I was, I do know that if I do too much I feel horrible for the rest of the evening. But, I am a work in progress!! I hope you are doing well and having a great weekend!

      Liked by 1 person

      • Create Space says:

        So glad to hear you are better, just try to stay within a healthy boundary and not over do it. I had a nice weekend thank you for asking. Only 3.5 weeks to our Christmas holidays!

        Like

      • I am doing my best to stay within a healthy boundary! I actually did not go to work today because I was feeling so sick last night. I feel kind of bad for missing work but I just do not want to over do things or make anyone else sick. I nominated you for the Awesome Blogger Award!! I just hope I did it all right!!!
        That is good news we only have 3.5 weeks until we have another break!!!

        Liked by 1 person

      • Create Space says:

        I’m sorry to hear you felt so sick last night but well done Alyssa putting your health ahead of work commitment, I hear a new maturity in your voice! Try to be non-judgemental of yourself and avoid feeling bad, you made an informed and wise decision based on fact.

        I’m blown away and feel so privileged and humbled that you would nominate me for an award!! Thank you so much Alyssa! I hope resting today has helped you feel better.

        Liked by 1 person

      • Thank you, I am hoping this will get better soon! I have been doing my best to rest and not be so hard on myself!

        You are very welcome! You definitely deserved the nomination!!!

        Liked by 1 person

  2. I’m learning from you constantly.

    Liked by 1 person

  3. speak766 says:

    Wow, great post. Thank you for speaking so honestly about this. You’re right – people do tend to only believe what they see right in front of them, and I can’t imagine how incredibly frustrating that must be. Your positive attitude and resilience are inspiring. Much love – speak766

    Liked by 1 person

  4. Thanks for talking about invisible disabilities.Heck, I had to write an entire book on the subject to help people understand! My husband and I are like you and your husband. We like the comfort of home and enjoy keeping things simple. It evolved over the years as my illness got worse, but I’m completely at peace with it, as you seem to be. Thinking of you and sending happy, healing thoughts. Aunt Martha

    Like

  5. Aixa says:

    You are very impressive! I look forward to following your struggles and success and I’ll be rooting you on.

    Liked by 1 person

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