Plan of Action!

Happy Tuesday 2I hope y’all are having a good evening! I did not return to work today as I thought I would, but I do have a new plan. I discussed my plan with my boss this morning and he agreed to allow me to adjust my work hours for the rest of this week, I will be working 10-6. Mornings have been significantly harder for me, which is crazy because I have always been a morning person. Hopefully this mild adjustment will help gradually get back into the flow of work. I do not plan to over do anything because I will then be back in a bad situation.

No one can say for sure if this flare up happened because I decided to switch my medication from Gilenya to Tecfidera or if there was another reason for it. However, my doctor did tell me several times that Tecfidera was not strong enough to keep my MS under control, which maybe she is right. I am going back on Gilenya starting Monday October 30th. I do need to go through the 6 hours of observation again, but a doctor is being sent to my house to do this, which makes things a little easier. Last time I had to sit in a room with several other people for 6 very long hours and it was not very comfortable. Hopefully once back on the Gilenya my MS will be under a little more control. Besides going back on Gilenya, I am learning to keep my stress under control. Stress can cause so many issues for everyone, not just those with MS.Butterfly hope 

I am not really sure why but I have had a headache for days now. It will ease up for a short amount of time, but then it gets so bad I can not even see straight. I am wondering if these headaches have something to do with the steroids I was on. Hopefully my body will continue adjusting and these headaches will stop. I do unfortunately still have a lot of pain in my mid to lower back and I have numbness in my legs. But, like the headaches hopefully this will end as well.

I hope you have a great evening! I will let y’all know how my first day back at work goes tomorrow. I am so glad I was able to adjust my hours and do not have to be there until 10:00! As always if you have any comments please feel free to leave them and I will respond as quickly as I can! 

Love 2

 

Always, Alyssa

 

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26 thoughts on “Plan of Action!

  1. I wonder if the flare up was caused from being off meds while you switched? I’ve heard that being off meds for a time can result in a flare up. 😢 Have you found another doctor? I know you weren’t really happy with your neurologist. I have to say having a doctor that you’re comfortable with is so incredibly important. I hope you’re feeling better soon! Best of luck tomorrow!

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    • I had to be off the Gilenya for 1 month before I could start the Tecfidera, so I don’t know if that is what caused it or not. I am still checking out different doctors, the only thing that sucks is they are all at least 2 hours away. Thank you, I hope tomorrow goes well too!

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      • Oh that’s horrible. I’m lucky mine is only 10 minutes to one office and 35 to his other office. Hoping you get back to normal going back to Gilenya!

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      • Thank you so much, I am sure things will get better! We have the research triangle in NC but that is what is 2 hours away. There are some brilliant doctors there though so it might be worth it. My current doctor and I do not see eye to eye on good patient care!

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    • Good morning to you. I only personally know of two treatments that is Rebif and Tysabri. Keep in mind your body will let you know if it doesn’t like something. So make sure you listen to your body. Also with the headaches just two weeks ago I had a headache for weeks. I drank so much water I was swimming. So I was able to rule out MS quickly. Usually for me when I get real bad headaches it’s a reminder that I’m not drinking as much water but when that wasn’t working I realized it’s something else. Something as simple as changing my pillows I’ve not had a headache now in 2 weeks. I have to remind myself that my whole life is not MS I am now 37 years old and I’m getting older. Try something else, check your sleeping and eating habits are you eating something new? Do you need a new pillow? Here at Step For Me we are “Stepping toward balancing a New Walk of Life.” Printed on our t-shirts. To us that applies to multiple sclerosis, medicines and treatment, home life/family, work and play, and most importantly faith. Have a blessed day sweetie.

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      • Thank you for sharing this with me. I am pretty sure the headaches are from not eating enough, I have not had much of an appetite, stress and some sinus issues I have had for a while. I am working on the appetite and stress issues now. That is exciting about the t-shirts! I hope you have a great evening!!

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  2. Hi Alyssa
    One idea to lower your stress and guilt is work part-time hours. If you can go more great but take a load off with the stress of everyday beating yourself up. Another thought, can you take a leave of absence? Maybe a month then see how the flare is doing. Each step you take to take stress of your shoulders the better you will feel. I’m thinking about you. Rough day for me so going to bed early. 🙂

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    • I was actually on Gilenya for 6 years prior to switching to Tecfidera. Tecfidera was not strong enough for me, so Monday I am going back on Gilenya. Honestly, I was flare up free during the time I was on it. I had minor issues but they were not bad enough to put me on steroids. I wish you luck with Gilenya if you do decide to go on this. I am really sorry for the delayed response!!!

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