Almost there!!

Start each dayI hope y’all had a good Wednesday! Once again, I had another successful day and didn’t miss the day or any part of the day at all! Yes I was in pain, but I didn’t let it get the best of me. I pushed it through 9 very long hours. We now only have 2 days remaining until we have reached the goal of the weekend!

After waiting for four days, I finally heard back from the Nurse Practitioner today. It sure took her long enough and her response was not helpful at all. Of course, her response was close to 5:00 and it was via email, so I wasn’t able to ask any additional questions. I did respond to her email with a few questions. She wants me to come in and make sure I do not have any infections and also recommended another medicine for neuropathy pain. If she was actually paying attention to my chart, she would have seen I did try the medicine she was suggesting, and it caused me to have a lot of nausea. Like I said last night, she needed to have a good reason for me to try any other medications and that offered actual benefits, instead of additional issues. Basically, I strong for painwill deal with my pain issues and NOT be put on any other medications, period!

This is a quick update on how I am doing with the Tecfidera. Saturday will be two-weeks since I started taking Tecfidera. I am still experiencing some side effects and I don’t know if I am just going to have to get used to them, or if they will go away. The hot flashes are just annoying. I can literally go from being freezing cold, to burning up hot in a matter of seconds. Last night, I was shivering because I was so cold and then was pouring sweat. The itching is absolutely insane. Jon and I were on our way out last night to pick up dinner, I sat there scratching my legs raw. I have found that putting lotion on does relieve some of the itching, but not entirely. The last issue I am having is stomach issues. But, I guess the Tecfidera is not causing anything I can not handle in order to slow the progression of the Multiple Sclerosis. Quick question, does anyone know if these side effects will go away and if so, how long do I have to deal with them?

Thank you for continuing to read my posts and make comments. I really appreciate all of your advice and support! I have made some really fantastic connections with so many amazing people. For those of you that I have already gotten to know some, I look forward to getting to know you even more. I also look forward to getting to know even more of you. Being able to write about how I am feeling and what I am going through, has been such an amazing experience and allowed me to feel so much better! I hope y’all have a great evening and a great Thursday! Thank goodness, it is almost Friday! 

Love 2


Always, Alyssa



Another Day Down, 3 To Go!

TuesdayI hope y’all had a great day today! WOW, I can not believe it is ONLY Tuesday. Just think, we are pretty much half way through the week! I am very excited for this weekend for several reasons. One reason is easy to figure out, I don’t have to work the weekend and I can sleep in! Another reason is, I am getting my nails and toes done. I love having my nails and does done! It is so incredibly relaxing and makes me feel so good!!!                                                                           1079 

Today, even though I was still in a lot of pain, I worked almost 9 hours! My goodness, it was so difficult getting through the day, because all I really wanted to do at about 11 am was lay down, considering that  actually takes some of pressure off my back. In all honesty, my pain level right now in my back, legs and shoulder is above a 10. But, at least I made it through an entire day without having to cut my day short, which I consider a success! I am so thankful to be home now with the ability to rest with my wonderful husband and sweet cats. One of the best parts of my day is, coming home to be greeted by both of my cats at the door and changing into my comfortable clothes!

I am very excited that my manager approved my PTO request for next Friday! I am going to be spending the day with my mother to celebrate my birthday, which is next Saturday. My mother and I will have a nice time going out to lunch and maybe going to the mall. Next weekend is an exciting time for me and my husband. My birthday being Saturday, September 30th and Sunday October 1st, being mine and Jon’s Love6th wedding anniversary! October 1st is also the anniversary of 7 years since Jon proposed to me on stage with The Red Jumpsuit Apparatus. It should be a great weekend and I can not wait! It is hard to believe that it has been 6 years already. My wedding day was the most relaxed that I have ever been. I knew I was marrying the love of my life and soul mate. For someone who is always stressed, my wedding day when most brides are a little on the stressed side, I was very relaxed. I was a little emotional because my Grandfather could not be there and my father choose not to be there, but everyone else that matters to me was there supporting us!

I am very hopeful that by making it through an entire day at work, maybe my pain will Pain 1start getting better. I think I have been suffering for long enough and it is time for it to start decreasing. Even though it was hard to get through the day, I did it! Maybe tomorrow will be easier, but we will see. I have been pretty frustrated because it doesn’t seem like people really understand and probably think I am blowing things out of proportion. One of my co-workers asked me today if I was feeling better. When I started to explain how I was feeling, they changed the subject. I mean, why ask if you don’t really care to hear the answer? Others that claim to be a friend, didn’t even bother asking. But truth is, none of that really matters. I know that I have the love and support of my husband!

I hope y’all have a great evening and a fantastic Wednesday! Tomorrow, when you are ready for the day to be over and the clock is not moving fast enough, think positive, it is almost the weekend! Sometimes finding the positive in every situation will make you feel better. Earlier today, my boss was talking about how much extra work we have and will continue to have because of the Hurricanes and I said, “Well at least we are not dealing with the tragedies the victims are dealing with.” all he could say was “I guess that is true.” Turing negative to positive is a good thing to be able to do! Next time someone says something truly negative to you, try flipping things around and saying something positive to them and see what their response is!

Love 2


Always, Alyssa



Just another painful Monday!

Monday 5Happy Monday! I hope y’all had a good start to the week. It is kind of funny saying, “Happy Monday”, when I know there is not one person out there that likes Monday. It is kind of a rude awakening that the weekend is over, and it is time to get back to the reality of our normal workdays. But, we survived it and hopefully will be home relaxing soon!

As y’all are aware, I have been battling a lot of pain for it seems like weeks now. I sent a message to the Nurse Practitioner today, regarding the medication she has me on that is supposed to help with neuropathy pain. Well, that medicine doesn’t help with anything but put me to sleep! I informed her that my pain is only escalating instead of decreasing. Of course, I didn’t hear back from her today. I am going to let her know ms 6whenever she does call me back, that I am starting to wein myself off of this medicine, as it isn’t helping. I do not want to be on so many medications, that I feel like an old lady in the mornings and evenings taking ALL my medicines. I would like to be on little as possible, and only those that are beneficial to me. We all have to be our own advocates with our healthcare, because doctors have so many patients, they do not seem to care as much as they really should. I am sure she will try to think of something to replace the one she has me on, but she better have a good reason, and I better feel comfortable with it or it isn’t going to happen. I will get through this pain, it is just going to take time and patience!

No one can see Multiple Sclerosis, we can only feel it. I mean, they can see lesions on an MRI scan, but you can not see it just by looking at someone. It was a struggle to get up this morning and get ready, because I could already feel that the pain was coming on fast. I only worked for five hours today, because I could not sit at my desk all day in pain. I know the people I work with do not understand what I am dealing with, and some just talk about why they think I left early. Pain 2Even when they do ask me questions, they can not understand the amount of pain I am in, and how much worse it is when I am at my desk all day long typing. I decided today, that it does not really matter what people think, or what they are going to say when I only work for five hours, it is more important to take care of myself. I am not going to push myself too far just to satisfy others. My work gets done, so I am not making anyone else work harder. All that really matters at work is, my manager understands and knows how hard I do work. 

In life, it is so important to surround yourself with positive and supportive people. The world has become so full of quick judgments, hatred, negativity and rude behaviors, that you can hardly go anywhere without experiencing at least one of these things. I remember not too long ago when I went to a store and parked in a handicap parking space, because I do have the permit, people walked by me making very hateful remarks. Just because I look perfectly normal to the naked eye, doesn’t mean that I do not suffer. It took every part of me to just walk away and not come back with an equally as hateful remark. But really surround-yourself-with-those-who-make-you-happy-quote-1what is that going to do, beside bring me down to their level. Instead, I walk away teary eyed and left the store shortly afterward. We can not let other people’s ignorance dictate what we do and when we do it. I do my best to only surround myself with people who bring positivity into my life. For those people that know me, I am a kind, compassionate and emphatic person, which I will continue to be so I do not become one of the hateful individuals in this world. I really want to always make a positive difference and encourage others to do the same. I know I can not change the world, but I can always be kind to people, especially those that need it. We do not know what hardships others are going through in their lives, and it is amazing what a smile or kind words can do for someone!

Here is a challenge for all of you and I really would love to hear how you feel afterwards. Next time you see someone out that looks as though they are having a really bad day, just simply smile and say to them “I hope you have a good day!” Or, when you are out at the mall and the person near you sneezes, say “Bless you.” People are really amazed at the kindness you have offered them. heart

Thank you for always reading my posts and making comments! I have really enjoyed the connections and communications I have had with so many wonderful people. I do always respond to your comments just as quickly as I can. I hope you have a great and restful evening! Y’all continue to remain strong and positive, as it will have a good impact on your life!

Love 2

Always, Alyssa

Sunday Fun Day!

SundayI hope y’all had a great weekend! Are you ready for Monday, the start of another long week, again? I can tell you, I am so far from being mentally and physically ready for Monday. I wish there was a way to have about a month off of work, but considering that isn’t possible, I am preparing myself as much as I can to tackle Monday morning!

Right now, I am working up the energy to go to the dreaded grocery store. I know it is something that I have to do and there is only two of us, so we don’t need a lot. But, I don’t know about you, I hate grocery shopping. It is always so crowded and the people aren’t very polite, they must love grocery shopping as much as I do! It seems that people are always walking three wide so you can’t get by them, and when you say “excuse me”, youSunday 1 are the one being rude! I thought about ordering online, so the people who work at the grocery store get everything together and put it in your car, but that costs extra. It might actually be worth it today. This might sound crazy, but I don’t like someone else picking out the fruit. Sometimes, some of the fruit at the grocery store don’t look all that great, so you have to look them all over to find the best one. I can’t imagine the person at the store getting my things together is going to be very picky. Even though it might take me a few more hours to build the energy up to do it, but I will just go to the store and do it myself. It should not take long and then I can come home and rest up for Monday.

Today is the second day of the full amount of Tecfidera. I am struggling somewhat because I am very nauseous. I don’t know if it is the Tecfidera or a stomach bug, but I have had a lot of stomach issues yesterday and today. The constant feeling that you have to vomit isn’t any fun. Whether the nausea is a stomach bug or side effects of the Tecfidera, hopefully it will ease up soon. It is crazy when you have doctors telling you that you need to gain weight, and then you start a medication where you are unable to keep things in, not sure how they expect me to maintain my weight or gain any. 

Struggling with pain and nausea has been very difficult, but I am trying to remain positive about these issues. They can’t last forever, right? Considering I have always believed that positive thoughts bring positive things, and negative thoughts bring downloadnegative things, I have remain positive. These things could be worse than they are, so I really have nothing to complain about. I am still able to write, read a book, do laundry and even go to the grocery store, so I guess you could say I am doing fairly well. It takes strength and positive thinking to move forward in life sometimes. I will not cave to the issues I am dealing with, instead I am going to keep my head held high and continue living. What other choices do we really have when faced with struggles? Giving up is not an option for me!

It might sound silly, but one thing that helps me get through pain and work is music. Music has the ability to change your mood and give some type of relief. If you can just focus on either the beat of the music or the lyrics, it can take your mind off of anything. There are a several bands that I absolutely love all their songs. I will only list a few Music makes the painbecause it could take all day to tell you about all of them. The Red Jumpsuit Apparatus has a special place in my heart, Fall Out Boy, Ed Sheeran (I know he isn’t a band, but I love some of his songs). David Osmond has one song that gives me hope, I Can Do This and so many more!!! But, you should really check out some of the music by these artists. I know that The Red Jumpsuit Apparatus has some new music coming out and it will be amazing like the rest of their music!

I hope you enjoy the rest of your weekend and I hope Monday isn’t too bad for you! Mondays are just another day to fight through and we can all make it! Remember, only do what you can and don’t push yourself too hard. The work will get done whether it be the same day or the next day, the world will not come to an end if you can’t get everything done the same day!

Thank you for continuing to read and comment on my posts! I appreciate all of you and the strength you all give me. As always please leave a comment and I will respond just as fast as I can! I love the connections we have made and look forward to making more. Take care and always remember the courage you have within you!

Love 2


Always, Alyssa

Full Amount!

SaturdayI hope your weekend is starting off well! It is a beautiful Saturday, so I hope y’all are able to enjoy the day! Personally, I am just enjoying the fact that I can rest and not worry about doing anything. I am working on getting myself healthy and pain-free. We will see how it goes by resting this weekend. Of course as y’all know I stayed home from work yesterday, so that gives me three days to recuperate from this pain. Hopefully by Monday it will be a lot more tolerable. 

Today, I started the  full dose of Tecfidera! Things are going well so far. Although, as I said yesterday that I thought I might have some kind of flu, well I do think I have some kind of viral thing. I woke up this morning and even before I took the Tecfidera was sick as a dog. I have felt weak of course from being ill this morning, but on the bright side I am starting to feel better and was able to keepLove crackers down. My sweet cats have not left my side for two days, I think they are trying to make me feel better. The love of animals can not really be described. But what I can say is, you can really see the love in their expressions. I am truly honored to have the love of my two amazing cats and my loving husband! The three of them give me so much strength to carry on with all the pain I am going through!

I was out of work yesterday and it was the moving day of our desk, so of course I wasn’t able to move my things. I did feel bad that I wasn’t there to move all my things, but thanks to my husband and kind friend, all my things were moved and set up for me, so I do not have to worry about anything when I return to work on Monday morning. I am so thankful for the good and loving download (1)people I have in my life. With all the hate there is in this world, it is refreshing to know that there are still some good people out there. I have never understood hate and discriminating against another person. When I talk to people, the only thing I see is another human being. All people have good qualities and bad ones, you just need to be able to know the difference. Hold onto the good ones that bring positive to your life, and let the bad ones that only bring negativity to your life go.

Living with a chronic illness that brings pain is not an easy thing to do, as y’all are aware of. It is hard to be positive when you are hurting. But I believe strongly that we all have the power to win our battles. There may not be cures for illnesses like Multiple Sclerosis, but we find ways to make it! No matter what we are battling, we all have the strength to fight and continue fighting. Maybe someday there will be cures for all of our suffering, images (2)but until that day comes, we stay strong and wait patiently. We lean on others when we need to and we help others when we can. Everyone that participates in this blog has struggles they are going through, and everyone has powers to offer guidance and encouragement. It is unbelievable how many people have reached out to me with words of wisdom and needing help. I really want to offer strength and courage to others. 

As always, thank you for reading my posts and making amazing comments. I have really enjoyed connecting with everyone all around the world. Everyone has something to offer with the healing process. I hope the rest of your Saturday is wonderful!

Love 2


Always, Alyssa

Never Ending Pain!

Welcome Weekend 2Despite the title of this post, I hope y’all had a good Friday. Even though I am not feeling all that great, I am glad that the weekend is finally here. It gives us two days to relax and do things we weren’t able to do during the week. I honestly have absolutely nothing planned for this weekend besides getting myself feeling better.

As y’all know, I have been suffering with a great deal of pain for at least a week now. I was out of work on Monday, left work an hour early yesterday and missed work again today because of this issue. When my pain is at a tolerable level, I can typically just deal with the pain by trying to not think about it. However, this past week the levels were soPain 3 high, that I could hardly even focus. Yesterday at work, I was in so much pain that there were actually times when I completely forgot what it was I was doing. It almost feels as though I have the flu because my entire body hurts. I told my husband last night there was not one part of me that didn’t hurt. I guess it is possible I do have the flu considering my throat has started hurting, but I do not think I have a fever. Yes, I have had hot and cold flashes, but I am pretty sure that is from the Tecfidera. I really just need one day where I do not have any pain at all, but I am starting to think that is just a fairy tale for me. 

For those of you that have a chronic illness, that just so happens to come with pain, I am sure you can understand my frustrations with pain. It seems to me that pain can really Pain go awayalter your personality and your way of thinking. It can feel like there is a dark cloud just hovering over your head and no matter which way you turn, the cloud just keeps following you. Granted, there are some things you just start to grow accustomed to and find ways to cope, but we all have a breaking point and need relief. I mean, I can completely tolerate pain in my legs and even in my back most of the time, but there is still a level that ends up being too much for me. The one thing I can’t handle at all is a bad headache. I don’t know of anyone that can deal with a bad headache. My husband actually suffers from migraines as well and that is some of the worst pain a person can have. The only thing I, as well as my husband can do for a headache is be in a dark room, with an ice pack on our head. It is hard to even begin to describe what it feels like when your entire body aches. I wouldn’t wish this feeling on anyone. If there was a way I could leave my body for a few hours for relief I would.

Pain 5I know that there are some people who are going through so much more than I am and I need to be grateful, it just gets hard sometimes. I do know it is important to try to not dwell on pain, because it doesn’t make it go away. I have been trying for days now to try to either focus my mind on relaxing things or look at the more positive things life has to offer. I know that this pain issue will ease up at some point, I just wish that day was yesterday.

So, tomorrow makes one week since I started the Tecfidera. I am still experiencing the hot80d6c922e2930953ad159372a3be5f6d and cold flashes and some stomach problems, but the itching has dwindled. My dose will be changing tomorrow to the normal amount. Hopefully, the issues I have been experiencing won’t increase and there won’t be any other changes. I am trying to remain optimistic that this medication will work for me. I am a strong woman, but I don’t think I can handle too many more issues. I will keep y’all updated as I start the increased amount of Tecfidera. I can only hope that I have nothing but great things to report!

I hope y’all have a nice relaxing evening. I sincerely appreciate all of your support and encouragement. Thank you for continuing to read and make comments on my posts. Please remember to stay strong and continue to fight your battles with nothing but strength and positivity. No matter what your struggles are, never let them defeat you! 

Hope for cure


Always, Alyssa

Pain Scales?

images (3)Happy Friday Eve Y’all! I don’t know about you, but I am so happy tomorrow is Friday! It seems that the weeks are getting longer, but maybe that is because I have been battling pain for so long. I feel like the moment I think it is getting better, the pain just comes back again just as bad, if not worse than before. It is mildly frustrating and a little discouraging.

Today, my pain was so bad I actually asked my husband, with tears in my eyes, if this was ever going to end. I am getting so beyond frustrated that I was starting to wonder, is this going to just be my life, living with constant pain. I know I have said before, but the only thing that helps my back pain is to lay down. I almost made it through the entire day at work, with my pain level above 10, downloadbut I ended up coming home from work an hour early. That of course made me feel weak, considering I have always said I won’t let this disease control my life. But, I also feel that sometimes our body is trying to tell us to rest. There is one medication my doctor wanted me to try for pain. She said that it helps with neuropathy pain, but the only thing it has been doing for me is making me extremely tired and not reliving any of my pain. She said that it takes a few weeks to start working, and taking it twice a day my body will get used to any side effects. Well, it has been over MS Nurserya month and it still makes me so tired, to the point I feel like I am falling asleep at my desk at work. At this point, I think I am going to start weaning myself off of this medication. I was very reluctant in the beginning for trying it, but now that I have given it an honest effort and do not see any benefit, I think it is time to stop taking it. I will of course notify my doctor, as she did say if it wasn’t helping it would be fine to discontinue it. Let me just say, it isn’t a medication that is meant for Multiple Sclerosis, it is just supposed to help neuropathy issues. I guess it doesn’t work that way for everyone though.

Now y’all know by now, I am not one that gives into anything. I am a very positive person and I want to be able to live my life to the fullest. I want to do everything a person that doesn’t live with a chronic illness can do. I do not and will not let Multiple Sclerosis define me as a person or take control of how I live my life. No matter how hard we try, we all go through times where we feel a little negative. Today, with how much pain I have been going through has been that day for me to be negative. I know there is no use crying about the pain as it truthfully doesn’t help, but my goodness we all have our MS Painbreaking point. I just really want some relief from the constant pain. Tomorrow is a new day and it is Friday, so hopefully tomorrow will be a better day. Making it through a day in pain is extremely difficult and definitely can change a person perspectives. So with me crying to my husband about hurting so much and asking him if this was going to be my life, well that was just a bad moment.

I am truly blessed to have an amazing husband that really understands me and is always so incredibly supportive. He has told me numerous times that no matter what, he will always be there for me and do anything within his power to help me. He is always there to encourage me and to remind me that the pain will end, it just takes time. He tells me all the time that I am strong, and will succeed in getting through the hard times. It is crazy, he can actually tell how bad I am feeling just by talking to me on the phone. We work in the same building, so when he stops by to say “Hi” to me, he always knows how I am  feeling before I have the chance to say anything at all. He will even tell me I need to go home and rest when he sees how much pain I am in. Love 2

Thank y’all for reading my rant about pain! I appreciate all of your continued support and fantastic comments you leave! I always respond to every comment as soon as I can. I hope you have a great Friday! No matter what you are going through in life, you have the choice to how hard you are willing to fight! I know all of you have so much strength as you have shared it with me!

Hope for cure


Always, Alyssa

Friday, here we come!!

downloadI hope y’all had a good Wednesday and that you are feeling good! Well we are thankfully half way through the week and I can not wait for the weekend! Even though we only have a two-day break from the work week, it is still wonderful to not have to rush around for anything! I truthfully do not have any plans for the weekend, which is actually a good feeling! 

I had to stop on my way home from work to pick up a few prescriptions. My goodness, what is going on with prescription prices? They seem to have gone up drastically from last year, when generic medicine was actually free! I don’t know about y’all, but I am really disappointed with healthcare costs and insurance coverage, or lack thereof. For those of us who have to take numerous different medications, it can be a way too costlyfrustration causing some to not take what is necessary for their health. Insurance companies can be just down right frustrating and kind of brutally heartless. The greed with these pharmaceutical companies is simply astonishing. Thank goodness some of if not most of the medications that are for the progression of MS have copay assistance programs. So heads up for all of you with any chronic illnesses, check with the companies to see if there is copay assistance. They of course do not want to tell you on their own, so you have to ask the question! Worse case scenario is they do not have any assistance programs, but at least you tried!

I am unfortunately still having a lot of pain in my back, legs and right shoulder through fb05da42f22694c36e8b59371dafba22--capricorn-female-being-sarcasticmy fingertips! The only thing that actually relieves my back pain even just a little bit, is laying down. Of course I can not do that at work. For some reason, laying down at work is frowned upon. I can not for the life of me understand why! Or if they would offer me a recliner to sit in while I do my work! Especially because I work for a company that says they love and value their employees. What a better way to show than to provide a recliner for me to work in? Okay, there was the sarcastic comments coming back again! But, am I joking about this or am I being serious?

I have almost been on the Tecidera for one entire week. I am, of course still experiencing downloadsome minor stomach discomfort, itchiness and hot flashes, but they are tolerable. They might be a little annoying, but I can handle it! Hopefully, only a couple more weeks of dealing with these side effects and things will balance out. Now, this Saturday I am going to be starting the full dose, whereas the first week they start you on the lower amount. But again, hopefully my body is getting used to it and nothing else will arise.

Thank you all for continuing to read and make great comments on my posts. I appreciate all of your encouragement, kind words and most of the strength y’all are giving me. I hope y’all have a good evening and a fantastic day tomorrow, as it is Friday Eve! Take care and continue staying strong, never allowing anything at all to defeat you!

Hope for cure


Always, Alyssa


Just another day in Paradise!

Sarcastic-Quotations-049I am sure y’all could hear the sarcasm in my title. I woke up this morning to it being chilly and rainy, but the it did clear up throughout the day. Unfortunately, my pain stayed consistent. Even my right shoulder through my fingertips started hurting again, which is aggravating when you have to type all day at work. Considering I was in a lot of pain and went to work anyways, I spent a lot of the day quiet! This was in effort to not offend anyone. When you are in a lot of pain and people want to say the most ignorant things to you, it can feel like 4cb17580349e3db8272f817617b2e996--break-outs-allergiesyour head is about ready to burst! Plus, it was a pretty busy day so that only made me feel a little on the stressed side. But, I made it through my 8 1/2 hour-long day at work and was able to come home, to get all nice and comfy! I am pretty sure I get my sarcastic personality from my Grandfather, he was the master of it!

So on a more positive thought, today was the fourth day of my new medicine. Truth is, that is the only positive. I know it is going to take about three weeks for the stomach uneasiness and itchiness to stop, but my goodness I wish it would end sooner. Oh, and I forgot to mention hot flashes. I go from being freezing cold to burning up hot! But at least I am staying with it, and not letting a few side effects make me want to stop it all together. I know the issues will stop and this medicine will slow the progression of the disease, so that is hope 2enough for me to stay on it and deal with whatever I need to. The strength we have inside of us is amazing! I want to be able to control the MS, as I do want to delay any possible progression for as long as I possibly can. I am very independent, so I want to be able to take care of myself and my family.  Of course the family I try to take care of is, my husband and two cats, but still I want to be able to do as much as I can for them.

Another positive thing about today is, it is my mother’s birthday! I know she probably couldn’t care less about another birthday, but it should still be a special day! Also, the rest of the week is supposed to be sunny, so I don’t have to deal with rain! Maybe the postivethinkingweather trying to maintain will make my pain lesson. See, I can be optimistic and not so sarcastic! I look forward a time where I can get through an entire day with no pain, or at least pain that is more manageable. I have to believe that this day will come to be more than just an “I hope” but a reality, I just don’t know when that will be. 

I want to share with you that I have received several comments that I have been an inspiration for them with how positive I have been, even while dealing with a lot of pain. imagesThat means so much to me, as it is one of my goals from doing my posts everyday. I really want to be able to help those suffering with chronic illness and or pain. I want to be able to give them a reason to believe there is a way through all this madness. I gain a lot of courage through y’all, and want to be able to give that back to others. It is so important to be able to build a connection with others that really understand what you are going through, and be able to give you a reason to believe, there is a light somewhere in the tunnel of darkness. 

Thank y’all again for continuing to read my posts and make comments. I truly love all the connections I have made with so many of you. This blog has made me see, that there are so many incredible people out there, and I appreciate all of you! Each one of you has made a positive impact on my life, that I will forever be thankful for. I hope y’all have a great Wednesday! Continue maintaining your strength and courage, it makes a big difference. Look at me, I started off this post being a little on the negative side and by the end of my post, I am back to be my same optimistic self! Pop question, what do you think my favorite color is?

Hope for cure


Always, Alyssa

Painful, Rainy Monday!

How did we get back to Monday so fast? It really is amazing how fast the weekend goes by. Sometimes, I feel like I didn’t get much accomplished in the two days off work. Well, I guess I did do something, I started my new medicine. 

pain 3As so many of you know, rain causes pain to act up even more than normal! Today, it is so chilly and rainy, that I am in a lot of pain. I did manage to take the Tecfidera for the sixth time now. Thankfully, I am not really all that itchy and my stomach isn’t as bad as it was, but is still a little uneasy. I do not feel 100%, but maybe it has something to do with the weather making me hurt! All I reallystrong for pain want to do today is stay curled up with my blanket and my cats on the couch nice and cozy, I might add a book to the mix as well!

Unfortunately, I know tomorrows weather is going to be just like it is today! We are supposed to have another windy and rainy day. Trying to stay motivated when you are in pain is a difficult task, but I am not going to give into the pain. I know that many of you really understand what I am going through right now, and all of you have been so pain 4encouraging! We all have a certain battle in life to deal with, but we are all strong enough to get through it. We all have a power hidden inside of us to make it through the worst of times, sometimes even with a smile on our face! It is truly amazing how hard we fight our battles and how sometimes, we do not even show are scars from the hard times!

My thoughts and prayers are still with all those who were effected by Hurricane Irma. I wish them strength and comfort as they struggle through this horrible event. I can’t even begin to imagine what they are feeling right now, but I sincerely hope that everyone can pull together and support each other during this time. 

I once again want to thank all of you that have read and made comments on my posts. This blog has truly been an amazing experience for me. I have connected with people all over the world and I have learned so much from everyone. For those who have helped06d94328b3276b7c4d4ef5b350a1b860 me through starting a new medication, that I was terrified to start, I would have been so much more uncomfortable without your help. Also, for some whose condition may have worsen, my thoughts and prayers are with you always and I am here for you, if you should need anything. I have a special connection with so many wonderful people, and I appreciate all you have done for me. I am thankful for my husband as well, who listened to be patiently while I went back and forth a million times about starting Tecidera. The man has patience made of steel, as it couldn’t have been easy to listen to me for so long about the same thing! 

I hope you all have a nice and safe Monday!

Hope for cure


Always, Alyssa