Almost there!!

Start each dayI hope y’all had a good Wednesday! Once again, I had another successful day and didn’t miss the day or any part of the day at all! Yes I was in pain, but I didn’t let it get the best of me. I pushed it through 9 very long hours. We now only have 2 days remaining until we have reached the goal of the weekend!

After waiting for four days, I finally heard back from the Nurse Practitioner today. It sure took her long enough and her response was not helpful at all. Of course, her response was close to 5:00 and it was via email, so I wasn’t able to ask any additional questions. I did respond to her email with a few questions. She wants me to come in and make sure I do not have any infections and also recommended another medicine for neuropathy pain. If she was actually paying attention to my chart, she would have seen I did try the medicine she was suggesting, and it caused me to have a lot of nausea. Like I said last night, she needed to have a good reason for me to try any other medications and that offered actual benefits, instead of additional issues. Basically, I strong for painwill deal with my pain issues and NOT be put on any other medications, period!

This is a quick update on how I am doing with the Tecfidera. Saturday will be two-weeks since I started taking Tecfidera. I am still experiencing some side effects and I don’t know if I am just going to have to get used to them, or if they will go away. The hot flashes are just annoying. I can literally go from being freezing cold, to burning up hot in a matter of seconds. Last night, I was shivering because I was so cold and then was pouring sweat. The itching is absolutely insane. Jon and I were on our way out last night to pick up dinner, I sat there scratching my legs raw. I have found that putting lotion on does relieve some of the itching, but not entirely. The last issue I am having is stomach issues. But, I guess the Tecfidera is not causing anything I can not handle in order to slow the progression of the Multiple Sclerosis. Quick question, does anyone know if these side effects will go away and if so, how long do I have to deal with them?

Thank you for continuing to read my posts and make comments. I really appreciate all of your advice and support! I have made some really fantastic connections with so many amazing people. For those of you that I have already gotten to know some, I look forward to getting to know you even more. I also look forward to getting to know even more of you. Being able to write about how I am feeling and what I am going through, has been such an amazing experience and allowed me to feel so much better! I hope y’all have a great evening and a great Thursday! Thank goodness, it is almost Friday! 

Love 2


Always, Alyssa


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