Friday, here we come!!

downloadI hope y’all had a good Wednesday and that you are feeling good! Well we are thankfully half way through the week and I can not wait for the weekend! Even though we only have a two-day break from the work week, it is still wonderful to not have to rush around for anything! I truthfully do not have any plans for the weekend, which is actually a good feeling! 

I had to stop on my way home from work to pick up a few prescriptions. My goodness, what is going on with prescription prices? They seem to have gone up drastically from last year, when generic medicine was actually free! I don’t know about y’all, but I am really disappointed with healthcare costs and insurance coverage, or lack thereof. For those of us who have to take numerous different medications, it can be a way too costlyfrustration causing some to not take what is necessary for their health. Insurance companies can be just down right frustrating and kind of brutally heartless. The greed with these pharmaceutical companies is simply astonishing. Thank goodness some of if not most of the medications that are for the progression of MS have copay assistance programs. So heads up for all of you with any chronic illnesses, check with the companies to see if there is copay assistance. They of course do not want to tell you on their own, so you have to ask the question! Worse case scenario is they do not have any assistance programs, but at least you tried!

I am unfortunately still having a lot of pain in my back, legs and right shoulder through fb05da42f22694c36e8b59371dafba22--capricorn-female-being-sarcasticmy fingertips! The only thing that actually relieves my back pain even just a little bit, is laying down. Of course I can not do that at work. For some reason, laying down at work is frowned upon. I can not for the life of me understand why! Or if they would offer me a recliner to sit in while I do my work! Especially because I work for a company that says they love and value their employees. What a better way to show than to provide a recliner for me to work in? Okay, there was the sarcastic comments coming back again! But, am I joking about this or am I being serious?

I have almost been on the Tecidera for one entire week. I am, of course still experiencing downloadsome minor stomach discomfort, itchiness and hot flashes, but they are tolerable. They might be a little annoying, but I can handle it! Hopefully, only a couple more weeks of dealing with these side effects and things will balance out. Now, this Saturday I am going to be starting the full dose, whereas the first week they start you on the lower amount. But again, hopefully my body is getting used to it and nothing else will arise.

Thank you all for continuing to read and make great comments on my posts. I appreciate all of your encouragement, kind words and most of the strength y’all are giving me. I hope y’all have a good evening and a fantastic day tomorrow, as it is Friday Eve! Take care and continue staying strong, never allowing anything at all to defeat you!

Hope for cure

 

Always, Alyssa

 

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15 thoughts on “Friday, here we come!!

  1. I suppose you live in the USA, right? I heard that it is really expensive to have MS there. I even saw this picture on Facebook once that the yearly expenses on the medicine for 1 MS patient could cover up the cost of a brand new car. I’ve been living in France for a couple of years now and I’ve been complaining about their food/living/communication habits a lot, but I can’t stop being grateful for a 100% MS coverage, any chronic illness for that matter. I know, we still pay sky hight taxes each month, but I guess I should start countring my blessings now…

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    • Yes, I live in the USA where everything is backwards! We have to pay a lot of money for insurance and then it hardly covers anything! Well, you have to get to a certain deductible which is HIGH! I am thankful that the medicine I take for the MS, has copay assistance. Or it would have been crazy expensive.

      So, healthcare in France is free? I bet it is beautiful there. I am assuming you speak French.

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      • I’m sorry it took me so long to reply, I’ve been a bit under the weather and couldn’t find the strength to keep on blogging or even turn my laptop on for that matter.
        Healthcare in France is not really free, we do pay a kind of insurance. We pay for every doctor’s visit BUT as we have “la carte vitale” and normally we get 80-90% refund, depends on a doctor. Those with chronic illness which has been oficially confirmed (paper work and all the nasty stuff) don’t pay a cent. When I have my MRIs or visit my neurologist or order my Tecfidera monthly at the pharmacist’s (anything connected with MS) I don’t pay at all.
        Yep, I was Ukrainian born so I speak Ukr and Rus as mother languages, then I had my diploma as a teacher of Eng and then I married a French, so yep I speak a few languages.
        Ok, I’ll stop here because it’s a really long reply as for a comment, sorry 🙂
        I hope you’re feeling fine today!

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      • Oh my goodness, no worries! I am sorry you were not feeling well. I hope you are better now. WOW, that is amazing you speak so many different languages. I am very impressed. I am so glad you live in a country where healthcare is fair! It is definitely NOT fair in the USA. It is pretty frustrating, but what can I do about it?
        I hope the rest of your weekend goes well and I really hope you are feeling better!
        Take care!xx

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      • He is very well! He has been very fortunate in the sense that he has been quite well since his diagnosis. He has had a few bad patches but he always comes through them. Thank you for asking 😊

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      • I am doing well! How about you? It is always nice to hear when someone is doing well but also important to share when we are not doing so well. One thing I’ve definitely learned since realising my issues with anxiety!

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      • I could not agree with you more! I don’t want others to have struggles, but it does offer some kind of support hearing what others are dealing with. I am doing okay, just suffering in SO much pain. I am glad you have learned some since talking about your anxiety. How is your day going today?

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      • I am sorry to hear about your pain. What are you able to do for it? That must be so difficult for you. Today is a good day! Got lots of preparation done for the week ahead. How is your day going?

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      • Honestly, there is not a lot I can do about it. I can take pain medicine and rest, but that is about it. I am just a little down today because I am so tired off all the issues, but I will get through it. How is your day going?

        Liked by 1 person

      • That is very hard for you. That is also bound to have an impact on your overall mood. I suppose you can take every day as it comes and just think of that day, as opposed to what’s come before and what is yet to come. X

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  2. Ireland is moving more and more towards the American health care model. Public health care now sees people left waiting for days in hospital corridors on trolleys for a hospital bed and it can take years to get a routine operation. Private health care costs are constantly increasing going beyond reach of average families. So sad while the gap between rich and poor is expanding.

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