Just another day in Paradise!

Sarcastic-Quotations-049I am sure y’all could hear the sarcasm in my title. I woke up this morning to it being chilly and rainy, but the it did clear up throughout the day. Unfortunately, my pain stayed consistent. Even my right shoulder through my fingertips started hurting again, which is aggravating when you have to type all day at work. Considering I was in a lot of pain and went to work anyways, I spent a lot of the day quiet! This was in effort to not offend anyone. When you are in a lot of pain and people want to say the most ignorant things to you, it can feel like 4cb17580349e3db8272f817617b2e996--break-outs-allergiesyour head is about ready to burst! Plus, it was a pretty busy day so that only made me feel a little on the stressed side. But, I made it through my 8 1/2 hour-long day at work and was able to come home, to get all nice and comfy! I am pretty sure I get my sarcastic personality from my Grandfather, he was the master of it!

So on a more positive thought, today was the fourth day of my new medicine. Truth is, that is the only positive. I know it is going to take about three weeks for the stomach uneasiness and itchiness to stop, but my goodness I wish it would end sooner. Oh, and I forgot to mention hot flashes. I go from being freezing cold to burning up hot! But at least I am staying with it, and not letting a few side effects make me want to stop it all together. I know the issues will stop and this medicine will slow the progression of the disease, so that is hope 2enough for me to stay on it and deal with whatever I need to. The strength we have inside of us is amazing! I want to be able to control the MS, as I do want to delay any possible progression for as long as I possibly can. I am very independent, so I want to be able to take care of myself and my family.  Of course the family I try to take care of is, my husband and two cats, but still I want to be able to do as much as I can for them.

Another positive thing about today is, it is my mother’s birthday! I know she probably couldn’t care less about another birthday, but it should still be a special day! Also, the rest of the week is supposed to be sunny, so I don’t have to deal with rain! Maybe the postivethinkingweather trying to maintain will make my pain lesson. See, I can be optimistic and not so sarcastic! I look forward a time where I can get through an entire day with no pain, or at least pain that is more manageable. I have to believe that this day will come to be more than just an “I hope” but a reality, I just don’t know when that will be. 

I want to share with you that I have received several comments that I have been an inspiration for them with how positive I have been, even while dealing with a lot of pain. imagesThat means so much to me, as it is one of my goals from doing my posts everyday. I really want to be able to help those suffering with chronic illness and or pain. I want to be able to give them a reason to believe there is a way through all this madness. I gain a lot of courage through y’all, and want to be able to give that back to others. It is so important to be able to build a connection with others that really understand what you are going through, and be able to give you a reason to believe, there is a light somewhere in the tunnel of darkness. 

Thank y’all again for continuing to read my posts and make comments. I truly love all the connections I have made with so many of you. This blog has made me see, that there are so many incredible people out there, and I appreciate all of you! Each one of you has made a positive impact on my life, that I will forever be thankful for. I hope y’all have a great Wednesday! Continue maintaining your strength and courage, it makes a big difference. Look at me, I started off this post being a little on the negative side and by the end of my post, I am back to be my same optimistic self! Pop question, what do you think my favorite color is?

Hope for cure

 

Always, Alyssa

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12 thoughts on “Just another day in Paradise!

  1. “When you are in a lot of pain and people want to say the most ignorant things to you, it can feel like your head is about ready to burst!”

    Isn’t it the truth! I’ve experienced this more times than I can count. Sometimes just the silliest things my husband says to me when I’m in pain can set me off; he is a very sarcastic person, he says things just to say them, but more often than he realizes they come off wrong!

    Good on you for trying to stay so positive. I have such a hard time doing that most of the time, although I keep it to myself so I don’t drag anyone else along with me. And I hope your journey with your new medication improves soon and it works out for you.

    I’m going to take a guess and say purple is probably your favorite color, since your blog has a lot of purple. Purple is one of my favorite colors too.

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    • It is so hard to stay positive when you are in pain, I understand! I try to ignore the ignorant people, which sadly is a lot! I am starting my challenge of doing one post every day for one month, if you are already following me, I hope you enjoy and they will be helpful! Yes, you win!!!! My favorite color is purple and I love butterflies. I guess I am kind of an open book! Please let me know if I can do anything for you! Take care dear!!

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  2. Alyssa, I can so relate to the “being quiet, to not explode” situation. As my health has deteriorated, and my pain has gotten worse, it is that much harder to not lash out. Most people don’t say nasty, ignorant things with the sole purpose of hurting me. But, those whom do not suffer with chronic pains, and/or limitations, truly have no clue what we go through. I try to remind myself of this daily. But, I am human and do make mistakes. Many times my mouth moves faster, than my brain. Lol. Stay strong and keep up the good fight. Praying for you. ❤

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    • Thank you! When I am having a bad day and my pain is through the roof, my mouth definitely moves faster than my brain! It is important to remind ourselves daily, that a lot of people just don’t understand and no matter how much you try to explain, they still don’t get it! That was my main reason for being so silent yesterday! Today, I am a little more social with the people at work but not by much! I hope you are having a good day!!

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      • I totally agree. I’m getting by today. However, due to the vestibular testing I am having on the 15th, I’m not allowed to take ANY of my medicine for pain, muscle relaxers, anxiety, etc. So, I’m just taking the day, one minute at a time. Glad you’re having a somewhat better day. 👍

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  3. Bravo to you for hanging in there through the side effects of your meds, I tend to jump ship when the side effects seem worse than the symptoms they are supposed to relieve. But my doctors always say, “You know your own body better than anyone, so do what you need to do.”
    Like you, I’m very independent, and it is sooo important to me to be able to take care of my “family,” which consists of my loving husband, 2 dogs, 4 turtles and 5 quail. Being able to keep the house clean and keep my babies well is so important.
    I hope your good days outnumber the bad. Keep writing.

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    • Thank you for your comment, Martha ! It is really easy to get discouraged from medicine and it is easier to just stop whatever it is! I am pushing through all these issues I am experiencing because I really am scared about the MS progressing. I won’t make a good patient if I can’t take care of myself and everyone else!

      That is great about your animals. What kind of dogs do you have? And WOW turtles and quail, that is so amazing! I almost got a turtle not long ago. She was just a little baby, but I was scared to add something else for me to take care of. I was being mean the other day at work and said one of my co-workers reminds me of a turtle. She hides behind her monitors, then pops her head up every now and then to see what people are doing. So, I said she was like a turtle that is in their shell and comes out now and again! That was mean, but not to my co-worker, to the poor turtles in this world:)!!

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      • Hi Alyssa. I hope your flu/virus goes away soon so you can enjoy a little of your weekend. I think it’s great that you have been posting about your struggles with medication. There is healing in writing, as you may well know!
        Your cats sound sweet. I believe pets know when we are suffering and many will try to help us feel better.
        Like you, I feel so blessed to have a loving, supportive husband and my animals. The dogs show the most affection, of course. One is a 75 pound lab/shep mix named Cassie, and the other is an 11 pound Chihuahua mix named Henry. He’s especially demonstrative.
        Regarding turtles…some are nice and some are mean. Mine are all nice. I’m incubating 2 turtle eggs now. This is the first time for turtle eggs! I’ve hatched many quail, but never turtles. If they hatch, it will be in mid October.
        For me, taking care of animals is very therapeutic becauase it distracts me and gives me a sense of purpose, but it can be overwhelming, and I don’t recommend taking on a new pet unless one feels confident about it. You are wise to have not gotten a turtle, as they are harder to care for than people think.
        I hope you have a great week!

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      • Thank you so much Martha! It really does help me to write about what I am going through. Not only does it get my mind off things but it allows me to get my feelings out.
        You dogs sound amazing! Animals are really smarter than people give them credit for. They have a sense when we are suffering and they do try to make us feel better. It is funny, our cat we have had for 13 years will always lay on whatever hurts on me. It is like she can read my mind. I am glad I didn’t get a turtle. They do seem like they are a lot of work! I think 2 cats is enough for me to take care of. Plus, taking care of my husband is like having a toddler!
        I hope you have a great week as well and thank you so much for your amazingly kind words!!!

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