What a day!

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heartToday is a day of new beginnings and remembering those whose journeys ended. Four years ago, I lost the man who I considered to be my Hero. My amazing Grandfather lost his battle of cancer and went onto his new adventure, in Heaven. No matter what I was going through in life, he was my rock that brought me back to reality. He made me see that no matter what I was dealing with, there was someone else was going through something even worse. He always supported me and gave me so much strength and courage. He was a brave and loving man, that had absolutely no evil in him. He taught me how to always be compassionate and see the good in everyone and always try to have empathy for those suffering. 

I feel like today is the perfect day for me to start my new path with Tecfidera. With today being the day I lost my Grandfather, I believe he is still with me through this event. Y’all know that I have been nervous about starting a new medication. I have battled through my first day 1fears and taken my first dose this morning. The only thing that has happened since I took the medicine this morning was I had a lot of itching in my arms, but there weren’t any hives. I think it is possible the itching was me being anxious about the medicine and worrying for those being affected by the hurricane. I don’t really think it is an allergic reaction, but I will definitely be mindful throughout the day for anything that might feel like an allergic reaction. But, I won’t borrow trouble and just stay positive!

We all know how difficult it is to live with a chronic illness. There are good days and bad days, but we need to hold onto the good in life. Looking towards the future can be a little scary,losing not happening but there are good times ahead of all of us. I made the promise 16 years ago to never all MS to control my life and I will always live by that. MS is a part of me but it is not all of me.  I am so thankful for my family and all the strength and support they offer me. I don’t know how I would make it through this battle without them. Plus, I have all of you that offer me so much encouragement. I want to thank all of you and my family for everything. I appreciate all of your advice, wisdom and optimism! I hope y’all have a great weekend and enjoy it as much as possible!ms 3

 

Always, AlyssaHope for cure

25 thoughts on “What a day!”

  1. I’ve been on Tecfidera for nearly a year now. So far no relapses (touch wood). The side effects I got was the itching, flushing and a burn like feeling. That was only a few Times. I still get the flushing now. Especially when I’m stressed! But it’s well worth it. 🙂 just make sure you have a healthy diet. Eat 3 meals a day. And have proper meals before taking it and you will be fine. 🙂

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    • Thank you SO much for your comment! I guess the itchy I had this morning was from the medicine. Honestly, I started to freak out because I thought I was allergic to it. Did you do anything for the itching? I put lotion on this morning but I don’t know if that helped or not. Where did you get the burning feeling? I am so sorry for the million questions. It is just so great to be able to ask someone that has been on it for a while what they went through! Thank you again, you have been so helpful!!!!!!!!

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      • I did nothing.. I was told to take anti histamines but Im one of those who would rather ride it out. Sometimes I put aloe Vera gel on it! It soothes it. The burning is the flushing and it’s always in my ears! Lol! Sometimes I get diarrhoea if I haven’t eaten properly. But it’s mainly the burning. You get used to it after a while and also it only comes when I’m stressed or I haven’t eaten properly! I’m pretty sure you will do well on. But please.. my main advise is this.. don’t eat fatty food on purpose. Doctors say eat fatty food but I’m pretty sure a well balanced meal is better. I ate fatty foods and ended up putting on a lot of weight. Just eat normally and healthy. Don’t take it on an empty stomach and don’t take it if you’ve been drinking alcohol.. take it an hour before you drink.. if there’s anything else please feel free to ask me! That’s what our community is about!

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      • Thank you so much for your advice! I really appreciate your help! You have been absolutely amazing! I am so thankful for our loving community. It is so wonderful to be able to have someone else that understands what I am dealing with and ask questions! I hope you have a wonderful weekend and thank you again for all your support! You really are so amazing!!!!!

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  3. Hey there! Can you do me a favor? Can you please like my blog. Just one like and it will be a great help! Please I really need it because of school purposes. Thank you in advance! 😇 Have a nice daay! 😊

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  4. Thanks for the follow. 🙂 I wanted to say that I am an MS Survivor …. As in, the child of a parent. My mom was diagnosed in 1990 when I was a month away from turning 11. My younger sister was 7.

    I have seen it all and my door is always open, so to speak. Momma was 48 when she was diagnosed and no one knew the first thing about the disease. We never knew if we would have her from one day to the next. We were lucky to have her with us for 25 more years. She was 72 when she passed in 2014.

    Feel free to message me at any time!

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    • MS is definitely all about being a survivor and never allowing it to take you down! I am so sorry to hear about your mother. How long have you had MS yourself? It is one of the most frustrating illnesses because there isn’t a cure or even a known reason for it. No one in my family has it, so I guess I was just the lucky one. Thank you so much for your response. If I can ever do anything for you, please feel free to reach out to me anytime! Take care my dear!

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      • I do not have MS. At least I don’t think so. I can’t get my doctors to run tests for ANYTHING. I suspect I have Ankylosing Spondyliyis and definitely something neurological, but none of it has been diagnosed. I just live in pain and go to pain management once a month.

        My mom always said she felt like she started showing symptoms in her 20s…which would have been the 1960s. It took 30 years for a doctor to know/understand what was going on. She also said she always suspected I got more of the ‘bad’ genes than I was supposed to because she was pregnant with me less than 18 months after she had her stomach stapled for weight loss. Even back then they recommended a 3 year wait for the body to heal. Who knows.

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      • Oh honey, I wasn’t saying that you had MS, I was just letting you know that I understand pain and telling you what I deal with. Living in pain and going to pain management is difficult. I have to go to pain management every 2 months. I wish you wellness and comfort my dear!

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