Happy Friday Eve Y’all! I hope you had a good Thursday. So, I told you I would keep you updated on when I was going to be able to start my Tecfidera journey. I received the news this morning that, although my blood count is not what you would consider normal, I am able to start the Tecfidera. My white blood cell count is still low, but has been rising, so I guess that is a good sign.
I am trying to decide if I am going to start the new medication tomorrow, or wait for Saturday, just in case I have any side effects. I know the most common side effect is flushing. To be honest with you, I have already been experiencing some crazy hot and cold flashes, but I guess that could be something viral. Who knows? Honestly, I probably wouldn’t experience any side effects the same day of starting the medicine and anything I would experience would probably occur a few days later. For those of you that have been on Tecfidera, would you recommend I start this medicine tomorrow or wait until Saturday? I guess because this is something new, I am nervous about what might happen. Logically, I know it is best to be positive about new things, but I am really bad about not thinking about all the side effects the doctors warn you about. I know I was terrified about starting the Gilenya 6 years ago because of all the side effects. Even though I did have several negative side effects from the Gilenya and have felt better in some ways being off of it, I didn’t experience anything deadly and the MS didn’t progress.
I am going to keep my word and stay positive. I just need to get past the hurdle of starting this medicine. It is crazy to say that I am excited about the possibilities of Tecfidera and nervous at the same time. This might be the perfect treatment for me and if it isn’t, I have done enough research to know what could be next. Heck, I could always go back on Gilenya or maybe there will be something new I stumble across. I just need to get past all my nervous jitters and just move forward.
It has been a couple of months that I have been off of any medication to slow the progression of the Multiple Sclerosis down. My sinus issues have gotten so much better, which has been great. My back and leg pain have remained steady and I haven’t had any relief at all, which is so incredibly frustrating. I do know that one of the most important things I have to do is keep my stress level low. That is so much easier said than done. This blog has helped me maintain my stress so much. Writing and hearing your feedback has been a great relief. I have built several connections through this blog and all of you have been so supportive and encouraging. There is so much support for those suffering with chronic diseases out there! If you remember from my first post, I want to be able to learn from each of you and I want to be able to help others as well. Helping others is so important to me. I am going to continue remaining positive with my new journey of treatment and really hope for the best.
Thank you for reading my long rant and update! If you have any thoughts or advice, please leave a comment. I always read and respond to your comments as soon as I am able to. I really appreciate all the support and encouragement you all have given me. I hope you have a great evening. And, thank goodness tomorrow is Friday! For some reason the short weeks always seem so much longer!