I hope y’all had a good day! Thankfully, we are halfway through the week!! Of course, I wasn’t patient enough today to wait for the doctor’s office to call me, so I sent the Nurse Practitioner that started me on Tecfidera a message via email earlier. I did get a response from one of the nurses regarding my blood work. The nurse said that my white blood cell count did go up, but she wasn’t sure it went up enough to start the Tecfidera and she was going to pass the message along to Jenny, the Nurse Practitioner. I guess I didn’t understand why I was getting a response from the nurse when I sent the message to the NP in the first place, but I guess that is how it works. So as of now I am still waiting to find out if I am supposed to be starting the Tecfidera now, or go in for another blood test in a week or so.
I have been off the Gilenya now for going on two months, so I don’t understand exactly why my blood work isn’t back to normal yet. Honestly, that just makes me believe even more that I made the right decision to stop Gilenya, because it was obviously too 
strong for my system. I am more than certain that I will get a phone call from Jenny, the NP, tomorrow giving me directions. Until then, I am just playing the “waiting game” and hoping for the best. I have always believed that us, as the patient know our body better than the doctors do and it was a good decision to give my body a break from medication. Not forever of course, but for a couple of months.
I want to thank all of you that have made comments. Every one of them has been so helpful and encouraging. I truly love the connections I have made with so many of you. I hope everyone is feeling in good spirits and enjoying life to the fullest! I will keep y’all updated as I hear more! I hope you have a great evening!
Always, Alyssa
Fightmsdaily 
I havn’t been on either so no use to say it will be better but I hope it works for you. I have been taken off rebiff as they say my relapsing remitting is now secondary and there is nothing for that. Stay strong my dear we can do this x
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Thank you so much for your response. It can definitely be a frustrating disease, which is one reason it is so important to have get outlets. I wish you wellness and comfort! Take care and if I can do anything for you, please do not hesitate to reach out to me. I am determined to try to learn from others but also help as much as I can ♡
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Definitely sounds like a good call to stop Gilenya, and to give your body a break from meds for a while. I really hope things start to pick up for you and that your body calms back down soon. Sending a hug your way xx
Caz 🙂
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I hate the waiting because my sense of urgency always seems different than everyone else’s. Hope you get some feedback soon
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All of these meds are so crazy. It’s like they come with a rap sheet of side effects longer than what MS gives us! Hang in there xo
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Thank you, I am trying but I am so tired of pain! This shit is getting old! I have missed four days of work now because of this. One of the days, I was scheduled to be off so that one doesn’t count I guess!!
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I totally understand. I started with copaxone which I hated but did it for almost 4 years
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Oh I hated the injections! Really, the injections did not hurt as much as the medicine going in. It was terrible!!!
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Yeah that burning was insane! The needles were hard for me because I’m a needle phone but it’s how your new normal can change so quickly
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I don’t mind getting blood drawn, I just have doing shots myself. I actually have to watch them when they take my blood! I am weird!
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Haha I’m so the opposite I nearly faint every time but since doing the Lemtrada I’ve gotta do monthly blood work and it’s getting slightly easier 😬
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Is that a shot as well?
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It’s five days of IV treatment along with steroids for like 6 hours a day for the 1st year and then 3 days the second year
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How does it make you feel? Steroids make me feel horrible
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The treatment week was intense and recovery after was up and down. It’s not a quick fix but hopefully will prevent future relapses. Since the treatment wipes out our secondary immune system, getting strength back, fighting fatigue and staying healthy have been the hardest
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That sounds like it is difficult. MS really does just plain and simple suck!
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Difficult is an understatement! Lol but at least round 1 is done.
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I hope the rest go well for you!!
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Thanks Alyssa!
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I am loving reading your blog Alyssa, I am sure you are a great inspiration to many others. 🌹
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Thank you so much! I really want to be able to inspire others. I want to be able to be a positive impact on others when there is already so much negative.
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